Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! "Denstined for Greatness; But pacing myself"
Wednesday, May 2, 2012
Caring Bridge 08/26/11
Today Kennedy went for a 2nd check-up since leaving the hospital on Aug 17th ~~ She is weighing in at a HUGE weight of 9lbs 2ozs. ( she in the 5th % for a preemie .. which is good ) ~ Kennedy has had a problem with throwing up her feeds and we have been trouble shooting different reason why, her Dr. doesn't seem to be that worried about it because she is still gaining good Wt. we are going to be thicking up her feeds and hopefully that will help her. ~~ Kennedy is doing well on the oxygen my RT (Mrs.Karin) is working on bring her down on the O2's she is on about 25% down from 35% last week and doing great! So hopefully very soon she will be off the trach collar during the day and only use it at night !! That will be one less thing to carry around so we are very excited !! ~~ Ken has three Dr.'s appt next week, one of them being her hearing test. So keep your fringers crossed that everything turns out well!!
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