Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! "Denstined for Greatness; But pacing myself"
Sunday, February 10, 2013
In Motion.
Wow, If you would have told me a year ago some of the things Kennedy is doing today I might not have believed you. Don't get me wrong, I always have high hopes when it comes to the future of Kennedy but she really is surprising me with how fast she is catching on to things. I couldn't be happier with the progress she has made in the last six months. I can't wait to see what the next six months bring. Kennedy is now crawling up the stairs, cruising the furniture faster and has started to crawl (only a couple of steps and with her head down) she has not done it too much, but it shows me that she is on her way. I hope to get a video of that soon if she will let me. ~~ On the 28th of this month she is going to see ENT and hopefully they will give a better idea of when they plan to do her surgery to open her nasal passages. Will update everyone as soon as I know. I am posting some videos of my Little Miss so you guys can see how fast my baby is growing up.

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