Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! "Denstined for Greatness; But pacing myself"
Tuesday, November 19, 2013
The best day ever
Today was they day! Decanulation day!
Please keep Kennedy in your thoughts for an easy night tonight!
Tuesday, November 12, 2013
Miss July!
Kennedy is now a super model!
Please check out www.chargecalendar.com
This is a calendar featuring some of the cutest CHARGE kids! Including our very own little miss, who is miss July! 100% of the proceeds are going to the CHARGE foundation!!!
*Exciting things our happening right now for Kennedy! Stay tuned I will update very soon!*
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