Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! "Denstined for Greatness; But pacing myself"
Wednesday, May 2, 2012
Caring Bridge 09/06/11
Kennedy has been to a couple of Dr.'s since my last entry ... Our big girl is weighing in at 9lbs 10ozs and 21inches long as of last Thursday! She has been doing well at home she still is spitting up and doing a little throw up but not as much ! (Thank gosh) . She had her first hearing test on Friday and found out that she has 100% hearing on her right side. On her left her canal is just a little smaller so it was hard for them to get the device to stay in her tiny ear. They did say that she does hear on the lefted but not sure to what degree. They talked with the ENT and decided that when she goes under for her nose surgery they will do a screening then because with this hearing test she had the babies have to stay completely still the whole time and if you know Ken that was never going to happen !! ;) So while she is under they will get a better and more accurate test . We are very happy with what we know so far and one good ear means that she will have not problem with speech ! YEAH! ~~ Her ENT check-up went good no problems there and they sch. her 1st check-up about her nose on 10/20/11 so I can't wait to see how close she is to getting her Nose job ..hehe !
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