Caring Bridge 3/10/12

 Kennedy has been doing great, even though the right side of her nose has closed up her lefted side is going good!!!! So, if we keep it good and open we are still on our way to getting the trach out!!! They have now down sized the trach and given her a pasy miror valve so that she can start to practice what it will be like to breath out of her nose and mouth. When Keni is wearing the valve we can now hear our baby coo and crying WE ARE SO EXCITED TO HEAR HER :-) ~~ We got some CT results about keni ears, she does need to have tubes placed but it will probably be another six months or so until her little ears are big enough but after the tubes are placed they feel that her right ear will be strong enough for her hearing and she will not need hearing aids ( her lefted ear has moderate to severe hearing lose) but until the surgery they feel they want to put a hearing aid on the right side just to give her the best hearing possible at her young age. I have started to do some signing with Keni and hopefully she will be able to start signing back in the near future. ~~~ also the CT showed that Kennedy does not have any Semi Circular Cancls in both ears. They help with balance with sitting and walking. It is not something that they can fix it is just something that our little trooper can over come. I have talked to a few families with CHARGE and they say that our little guys just learn to do it and it might take them a few extra years to walk steady but IT WILL HAPPEN!!!!! ~~~ On a much lighter note kennedy has hit some great little milestones lately on Feb 7th- she got her first tooth, March 5th- she showed us that she can clap ( which was so cute) and she is showing great progress on sitting, March 6th- we got to hear her coo for the first time with her new valve and March 8th- I lost her for the first time LOL. I was helping Joselain with her homework and had my back turned to Keni who was on the floor for about maybe 5 mins and when i turned around she was gone ! and where did i find her ?!?!?! under nana's chair in the living room ... She just showed me that she is a scooting like crazy and you can't turn your eye for even a minute anymore ( that little stinker) ...