Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! "Denstined for Greatness; But pacing myself"
Wednesday, May 2, 2012
Caring Bridge 12/18/11
On Thursday we found out that Kennedy will be having her Trach surgery on January 18th 2012 !! We are VERY excited ! She will be getting her first nose job!! hehehe .... Kennedy will still have her trach when she comes out of surgery. They will let her nose heal first before they put a cap on the trach. After she has worn the cap and done well with her breathing then they will remove the trach. This whole process can take anywhere from a few weeks to a month ! We are just so happy to get the process started . I honestly didn't think we would be having this done till about March or April so this was a great early Christmas present!!! We are busy getting everything ready for Keni first Christmas and she is just love looking at all the lights! We hope that ya'll have a very Merry Christmas and Happy New Year !!
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