Bath Time

Kennedy loves to watch the bath fill with water ! Cute little baby butt!

Busy Busy Busy

As always Kennedy is keep us on our toes! Jeremy took her to the after hours MUSC clinic to find out that Kennedy had a right ear infection and upper respiratory infection POOR BABY :( She was waking up with so much crusty sleep in her eyes that she could not open them on her own we had to use a warm wash cloth . I hate seeing keni like that and I am glad to say after an aggressive couple of days of meds she is doing just fine. Yesterday, I received news that Kennedy's surgery will be on Aug 8th @ 7 a.m. so that means arrival time 5:30 a.m. ~~ Hopefully nothing but good news from the imaging studies that she is having done! ~~ I want everyone to keep Kennedy in their thoughts and prayers for her surgery day . Even through this is not our first rodeo with surgery and this is not a very invasive surgery compared. It is still anaesthesia and that can always have complications ( so far kennedy has shown no signs of having problems with it and I hope she continues to do well with it everytime).

House of sickness

So, over the last few weeks one person or another has been sick in our house. First, it was Joselain then Keni then me and last and not wanting to be lefted out Jeremy. I think my whole household is just sick and tired or being sick and tired. Thankfully we are all on the mends and feeling better. Kennedy went to the GI dr. this past Wednesday were she showed her Dr. that sometimes with a little cough her food just doesn't stay down by throwing up all over her floor. ( I couldn't help but laugh- what else can you do) After talking with her Dr. we decided to do a Nuclear Med. study where they are going to put tracers in her food so we can watch how fast her body digest her food over 2 hours. So, yipee we have to spend our Wed morning at MUSC for a three hour test not including the time it take to get there and do all the paperwork and get home. Grrr..... I don't think the test will change anything we do for Kennedy now but it will be nice to know how her body is working on the inside. Beside a day or two over the last couple of weeks Keni has been her normal easy going self. She has been doing a lot of rolling , clapping, touching our noses, putting her fingers in our mouths, turning your head so she can see your earring rings, and pinching but I can't be more happier with her progress even if she is leaving little marks on me. LOL.

ENT

Kennedy went and saw ENT on Tuesday and they decided that keni's ears are big enough for her tubes. They will only be putting in the right side since the left has a small canal. I will be getting the date hopefully by next week. Kennedy will not only be getting a tube placed she will also have CT of the temporal bones, MRI of the brain , MRI of the temporal area , ABR (hearing test) and they are going to take a look in her nose to see how it is doing! WoW! just typing that makes me tired I can only imagine what my little miss goes through but I know she is tough , brave and going to go through this just like the other times before with FLYING COLORS!

Camping 6/2012

Kennedy and Uncle Cj at her B-Day party



Kennedy's treasure box she got from Inspriation through art program!




It was a little wet!











 

Camping June 2012

What a week we had camping! We decided that even through Kennedy might have some extra stuff going on compared to a "ideal child" doesn't mean that we can't do everyday things. So, we went camping with Joselain and our dog Sadie. It was a great week, we went for walks, fed the ducks, went to the beach, out on our boat, and even took Keni swimming. Joselain friends Tristan and Jazy joint us for the week as well. Kennedy did great and she had a blast. I knew from her 1st overnight stay at nana's house that she could stay overnight without all her machines just by keeping her on her therma vent. I couldn't have been happier with how her week turn out. I am so proud of her! She had a lot of firsts that week but the scary one for me was taking her IN the water just not on the shore. I did not have the balls to do it at first that was nana! I closed my eyes when she first took Keni out ! Its not that I don't trust nana is just the "what if's" . What if someone bums into you and you fall while holding her or what if you step on something in the lake and fall! SCARY! luckly it turned out fine everyone knew the rules while they were around her so we had no accidents. I can't say I will be doing that everyday but it was nice to take Kennedy out and let her experience how laying in her tube and soaking up the sun can be some much fun. We finished off the week with Kennedy's 1st birthday party and lets just say that Kennedy can't do anything without making sure that you will be talking about it. I started off as a very pretty day but soon ( like right when the party started) the sky fell out! We set up tents and tarps to keep people dry but before you knew things were falling and everyone was getting wet along with the food ! I should have put on the invite that it was a water party wear your suit! hehehe. Even with all the rain we had a blast and it will def be a party that noone will soon forget ! Pictures to follow soon!

Happy Happy Birthday

WOW! that is all I can say about 6/8/11. Now, here we are one year later and I would never have thought I would be at the place we are now. Kennedy has come so far and overcome so many things. More than that she has taught my family and me so much. She has taught me to slow down and enjoy life. She has made face things that I thought I would never. I have learned that I could LOVE someone so much that it hurts. Happy, Sad, excited, fear, lonely, depressed, and overwhelming joy are all the things that I have felt this last year. I want to thank Kennedy for making me a better person for showing me that life can change in one instance . For all that we have been through in the last year: a 10 week hospital stay, six surgeries, two ER visits, three therapies a week and numerous Dr.'s appts it show's I can't perdict the furture but Keni has taught me that it is OKAY and you don't need to you just need to live and enjoy all the moments even the small ones.