Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! "Denstined for Greatness; But pacing myself"
Friday, July 20, 2012
House of sickness
So, over the last few weeks one person or another has been sick in our house. First, it was Joselain then Keni then me and last and not wanting to be lefted out Jeremy. I think my whole household is just sick and tired or being sick and tired. Thankfully we are all on the mends and feeling better. Kennedy went to the GI dr. this past Wednesday were she showed her Dr. that sometimes with a little cough her food just doesn't stay down by throwing up all over her floor. ( I couldn't help but laugh- what else can you do) After talking with her Dr. we decided to do a Nuclear Med. study where they are going to put tracers in her food so we can watch how fast her body digest her food over 2 hours. So, yipee we have to spend our Wed morning at MUSC for a three hour test not including the time it take to get there and do all the paperwork and get home. Grrr..... I don't think the test will change anything we do for Kennedy now but it will be nice to know how her body is working on the inside. Beside a day or two over the last couple of weeks Keni has been her normal easy going self. She has been doing a lot of rolling , clapping, touching our noses, putting her fingers in our mouths, turning your head so she can see your earring rings, and pinching but I can't be more happier with her progress even if she is leaving little marks on me. LOL.
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