Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! "Denstined for Greatness; But pacing myself"
Wednesday, October 30, 2013
πππpumpkin fun picturesπππ
My stupid phone made me do these post serprate :-( Here are some pictures from our pumpkin craving tonight! Kennedy did much better than I thought. She didn't mind it on her hands as much as I thought. She is getting to be such a big girl! I love that she can be involved in everything we do now!!!!!! Joselain wanted to turn our pumpkin into a cat pumpkin so this master peice is all her! With daddy's help it turned out fantastic!
Tuesday, October 29, 2013
DC mini vacation
What a weekend we had! Jeremy and Ann had a beautiful wedding and became Mr. & Mrs. Hazel!!!!! Congrats again and thank you for letting us join in on the fun. Kennedy did great on the trip, we couldn't have asked for a better two year old in the car 8hrs both ways! Joselain also got to celebrate her 10 birthday with a day in downtown DC. My cousin Amber and aunt Shirley were able to join us for her birthday. Along with aunt Debbie as well so it was family fun all weekend. It was nice to combine all kinds of things in one weekend but it comes with a price called exhaustion..zzzzzz..... Now it is back to reality and the Kulas family is one busy household right now. I will be getting back to the grid of classes and clinic (it is almost over ... Woo hoo) and Kennedy has a check up on Halloween with ENT! Everyone keep their fingers crossed that her nose is still open. If it is we should get a game plan on what comes next and of course I will keep you guys posted!
Wednesday, October 23, 2013
Time is flying
Soooo sorry it has been so long since I have updated! Kennedy has gone through two nose surgeries since my last post! She has done very well and is hopefully on the path to getting that trach very soon! ---- She has a check up on Halloween so we will know more about what the game plan is for the rest of the year. They made one big hole in the back of her nose instead of two and so far it seems to be working! ππππ
We are getting ready to go on a little mini vacation to DC for our good friend Jeremy's wedding and to celebrate Joselain's 10th birthday. We are taking Kennedy on her first road trip. Hopefully she will do well with an 8 hour car ride!!! Wish us luck!
I hope to update on a more regular basis but with me in school and going to clinic time is very limited! I promise to be better!
Monday, September 30, 2013
Kennedy's Fundraiser 2013
So happy to announce that Little Miss Keni's Cafe
Fund Raiser has begun!
Please join us to support her by buying a box or 2 of your favorite flavor beverage. Proceeds from the sales are gong to benefit Kennedy's medical expenses and a 5K run to be organized by the Girl Scouts of America in Summerville, SC in March 2014. Also a portion of the proceeds will be sent directly to the CHARGE Syndrome Foundation!!
We are selling Coffee,hot chocolate, teas... etc..
It's simple...it's easy...it's the only healthy coffee with great health benefits! The coffee, Cafe Latte, Mocha, Green-Red or Black Teas that give your body an extra boost while supporting a great effort!
Directions
See attached web link...click...view...go to the buy products tab, on the top...click continue..products are at the very bottom.....add all your information for order for direct ship! ........
littlemisscafe.organogold.com/r/US/
Fund Raiser has begun!
Please join us to support her by buying a box or 2 of your favorite flavor beverage. Proceeds from the sales are gong to benefit Kennedy's medical expenses and a 5K run to be organized by the Girl Scouts of America in Summerville, SC in March 2014. Also a portion of the proceeds will be sent directly to the CHARGE Syndrome Foundation!!
We are selling Coffee,hot chocolate, teas... etc..
It's simple...it's easy...it's the only healthy coffee with great health benefits! The coffee, Cafe Latte, Mocha, Green-Red or Black Teas that give your body an extra boost while supporting a great effort!
Directions
See attached web link...click...view...go to the buy products tab, on the top...click continue..products are at the very bottom.....add all your information for order for direct ship! ........
littlemisscafe.organogold.com/r/US/
Monday, August 26, 2013
Friday, August 23, 2013
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