Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! "Denstined for Greatness; But pacing myself"
Tuesday, October 29, 2013
DC mini vacation
What a weekend we had! Jeremy and Ann had a beautiful wedding and became Mr. & Mrs. Hazel!!!!! Congrats again and thank you for letting us join in on the fun. Kennedy did great on the trip, we couldn't have asked for a better two year old in the car 8hrs both ways! Joselain also got to celebrate her 10 birthday with a day in downtown DC. My cousin Amber and aunt Shirley were able to join us for her birthday. Along with aunt Debbie as well so it was family fun all weekend. It was nice to combine all kinds of things in one weekend but it comes with a price called exhaustion..zzzzzz..... Now it is back to reality and the Kulas family is one busy household right now. I will be getting back to the grid of classes and clinic (it is almost over ... Woo hoo) and Kennedy has a check up on Halloween with ENT! Everyone keep their fingers crossed that her nose is still open. If it is we should get a game plan on what comes next and of course I will keep you guys posted!
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