My baby is a mom.....

I have been waiting for this day when Kennedy would play with a doll in this manner. I know it sounds weird but I have seen other videos of other CHARGE kiddos playing with dolls and I was jealous that Kennedy was not doing that. NOT anymore people she is showing us something new everyday and today she showed us that she loves her baby. :-)

is doing so well.......

Sorry, it took me so long to update you guys on Kennedy's surgery. She did so well doing the three hour surgery. She did have an issue keeping her stat's up right after the surgery. She was on lots of meds and was so sleeping that she had a time getting her stats to her normal 93%. So, we had to stay about three hours after the surgery for little miss to get with the program. Unlike last time we were able to go home same day. YEAH! The Dr. placed a stent in each nostrils and sewed them through her septum. The stents look so good. So, good that you can't even see them. Along with the stents she had tubes placed in both ears (were glad they were able to get a tube in the lefted one) and they seem to be doing good, we have had lots of "junk" coming out of them, which I hope means they are working. ENT also told us that Kennedy's adenoids were large and they will be looking into taking those out soon. This is the 1st time we have heard about there being a problem with her adenoids but hey we take it with a grain of salt. ~~ We have tried capping Kennedy since the surgery but she wants nothing to do with that. So, we will work at her pace and take it slow. People have been asking me "what's next with the trach" Well...... I think Kennedy needs to overcome her swallowing issue to be able to get her trach out. Kennedy has to learn how to NOT breathe and swallow at the same time (the trach allows her to do that). Also, she needs to learn to swallow more frequently. OT and Speech will be helping us with that along with lots and lots of practice. Again, we will be moving at her pace. I hope that is sooner rather than later but as she has taught us many time over, we have to take it one day at a time. Other, than that Kennedy has been herself since we lefted the hospital.
~~~~Playing in Pre-OP~~~~












~~~~Right after surgery~~~~




~~~~A few hours after surgery~~~~




~~~~The day after surgery~~~~




~~~~Jeremy and I waiting on Kennedy to get with the program~~~~




~~~~I had to post a picture of the BEST pizza in the Charleston area.. LOL yes, it is at MUSC~~~~

Another far away place.....

YEA! We made it to Canada.



This is also a Miss Kennedy! She has CHARGE as well and lives in Canada with her mom Lisa. I can't wait to meet her in July. Glad, to spread more awareness in far away places.

One surgery, two surgery, ............tenth surgery

Here are some pictures of Kennedy before surgery this morning. I will update with how it went and pictures soon!

Location:MUSC

CHARGE awareness, Makes it to the beach

Kennedy's Uncle Johnny and Aunt Megan makes us proud by spreading awareness all the way in Hawaii!



~~~~Thanks to everyone who is wearing Kennedy's shirts proudly and helping to bringing awareness to CHARGE. It doesn't just help Kennedy, you are making a difference for a whole community of families who have a little hero just like us.~~~~

One Deaf Child: Presentation by Rachel Coleman

I just watched this video and I can't tell you how much emotion I have going through me right now. Happiness, sadness, hope and many more I can't put into words. I found this you tube video through another CHARGE mom's blog a couple of days ago and I kept thinking "I don't have one hour and four mins to watch that video" so I didn't. Then tonight I saw it again and I thought "I could just watch a couple of mins". Let just say I couldn't stop watching, Duck Dynasty didn't stand a chance. LOL ~~ For those of ya'll who don't know this women in the video her name is Rachel Coleman and she is the creator of Signing Time which in our house is called "the crack videos". Kennedy watches them all the time as well as the rest of us. I know that this video is kinda long so watch it a little bit at a time if you need to because it is worth finishing. I think my other special needs moms will get sucked in and won't be able to look away. I hope you guys enjoy it as much as I did. I think her story will show strength and courage to fight for what you believe in.



http://youtu.be/b1VUpNv80IQ

Hanging around